National Academy of Medicine

Achieving Data Liquidity in the Cancer Community: Proposal for Coalition of All Stakeholders

By Marcia A. Kean, Amy P. Abernethy, Adam M. Clark, William S. Dalton, Brad H. Pollock, Lawrence N. Shulman, Sharon B. Murphy
May 11, 2012 | Discussion Paper

Rapid, seamless data exchange in cancer throughout the continuum from research to clinical care remains an unmet need with no clear path forward to a solution. We assert that there is a national urgency to find solutions to support and sustain the cancer informatics ecosystem (IOM, 2012c), and propose addressing this challenge through a coalition of diverse, interested stakeholders working in a precompetitive collaboration to achieve data liquidity. Such a coalition could work toward the goal of personalized cancer medicine, addressing the challenges in manageable, incremental steps.

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Disclaimer: The views expressed in this paper are those of the authors and not necessarily of the authors’ organizations, the National Academy of Medicine (NAM), or the National Academies of Sciences, Engineering, and Medicine (the National Academies). The paper is intended to help inform and stimulate discussion. It is not a report of the NAM or the National Academies. Copyright by the National Academy of Sciences. All rights reserved.