A guiding framework for patient and family engaged care:
Susan Frampton, Scientific Advisory Panel on the Evidence Base for Patient and Family Engaged Care
Exemplars in building foundations for PFEC:
David Longnecker, C-TAC, The Coalition to Transform Advanced Care
Monique Reese, Advanced Illness Management
Emerging topics in patient and family engaged care and research:
Rachel Grob, Learning from Patients’ Experiences for Better Culture, Health, and Care
Bev Johnson & Kim Streit, A Statewide Patient-and Family-Centered Care Learning Community
This meeting will work to address 3 core questions:
- Conceptual elements. What are the levers and opportunities for patient and family leaders and health system executives to use care culture as a tool to advance health outcomes?
- Lessons learned. What lessons can be gleaned from experiences to date with patient and family engaged care culture?
- Evidence priorities. Where is there opportunity to advance the evidence base for patient and family engaged care?