Workstream 3: Digital and Data Architecture

Enabling seamless delivery of continuously improving services and new knowledge development and application.

Problem Statement

Digital technology makes possible unprecedented potential for the speed, effectiveness, and outcomes of health care, public health, social services, and health research. To do so, collaborative policy, regulatory, and governance reforms must eliminate existing barriers to the digital connectivity and interoperability, data quality, data sharing and linkages, and analytic capacity for delivery and discovery activities required for advances in the common good.

Workstream Charge

The Digital and Data workstream will uplift alignment challenges, opportunities, and impacts related to the capture and conversion of health data into the intelligence needed to drive evidence-informed decisions and actions. Workstream members will produce a background paper that will inform Commission deliberations on the associated opportunities, priorities, and implications dependent on correcting the alignment of values, incentives, policies, and actions.

The paper will:

  1. review the status of and trends for the digitization of health information in the U.S.;
  2. describe how lack of data sharing and poor evidence mobilization contribute to a multitude of system shortfalls;
  3. identify salient contributors to the problem;
  4. identify accountability disconnects;
  5. estimate the health and economic costs of maintaining the status quo;
  6. estimate the potential health and economic gains from the digitization of health information that enables seamless, continuously improving services and new knowledge;
  7. identify legal, regulatory, or cultural levers to drive the change from where we are now to a better future state; and
  8. describe promising strategies for marshaling the will to deploy the necessary levers at the right place, at the right time.

Workstream Members

Chairs

Peter Embi
Chair | Senior Vice President for Research and Innovation, Vanderbilt University Medical Center
Ken Mandl
Chair | Director – Computational Health Informatics Program, Boston Children’s Hospital

Ex officio (Digital Health and Evidence Mobilization Action Collaborative co-chairs)

Members

Nasim Afsar
Chief Health Officer, Oracle Health
Brian Anderson
Chief Executive Officer, Coalition for Health AI
Wanda Barfield
Director of the Division of Reproductive Health, Centers for Disease Control and Prevention
Monica Bharel
Clinical Lead Public Sector Health, Google
Jamie Bland
President and CEO, CyncHealth
Jeff Brown
Chief Scientific Officer, TriNetX
Adam Eschenlauer
Research and Performance Analytics Chief, Defense Health Agency
Joe Franklin
Special Counsel, Covington & Burling LLP
William Gordon
Medical Officer and Senior Advisor on Data and Technology, Centers for Medicare and Medicaid Services
Susan Gregurick
Associate Director for Data Science and Director of the Office of Data Science Strategy, National Institutes of Health
Brent James
Executive Director of the Institute for Health Care Delivery Research, Intermountain Health
Anupam Jena
Joseph P. Newhouse Professor, Harvard Medical School
Thomas Maddox
Vice President, Digital Products and Innovation, BJC HealthCare
Karen Murphy
Senior Advisor to the President, Risant Health
Von Nguyen
Clinical Lead for Population Health, Google
2023-2025 Omenn Fellow

Ravi B. Parikh, MD, MPP, FACP, is an associate professor in the Department of Hematology and Medical Oncology at the Emory University School of Medicine. He serves as medical director of the Winship Data and Technology Applications Shared Resource at Winship Cancer Institute of Emory University.

Dr. Parikh’s work broadly focuses on improving care delivery for serious illnesses such as cancer. His work has specifically addressed areas including palliative and supportive care, cancer survivorship, alternative payment models, and risk-adjustment. Dr. Parikh’s work increasingly applies machine learning methods to longitudinal electronic health record data, patient-generated data, and data on social determinants of health to develop precision care solutions for patients with serious illness. Additionally, he has a robust portfolio in emerging topics in healthcare AI including algorithmic bias, human-machine collaboration, and AI regulation and policy. His work has been published in numerous leading journals, including Science, the New England Journal of Medicine, the Journal of Clinical Oncology, and Journal of the American Medical Association. He serves on the board of the Coalition to Transform Advanced Care (C-TAC) and advises for-profit and non-profit organizations on these areas. Prior to his career in medicine, Dr. Parikh worked on accountable care organization implementation in the Massachusetts State House; his recommendations earned commendation from the Massachusetts Speaker of the House and were incorporated into landmark payment reform legislation passed in 2012.

Dr. Parikh completed his MD at Harvard Medical School, Master of Public Policy at the John F. Kennedy School of Government, residency in internal medicine at Brigham and Women’s Hospital, and fellowship in Hematology and Oncology at the University of Pennsylvania. He has received the Conquer Cancer Foundation Young Investigator Award, Prostate Cancer Foundation Young Investigator Award, AMA Foundation Excellence in Medicine Leadership Award, and the American College of Physicians Joseph E. Johnson Award.

Larra Petersen-Lukenda
Chief Operating Officer, CyncHealth
Deborah Porterfield
Medical Officer, Office of Science and Data Policy, Office of the Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services
Troy Sarich
Chief Commercial Data Science Officer, Janssen Pharmaceuticals
Abdul Shaikh
Global Leader for Population Health Analytics, Amazon
Peter Speyer
Head of Data and Analytics, Novartis Foundation
Ken Yale
Senior Advisor for Health Strategy and Innovation, U.S. Department of Defense