Care Culture and Decision-Making
Science-driven health care and effective communication
Care Culture and Decision-Making (CCDmIC) is the newest of the Leadership Consortium’s convening activities. CCDmIC brings together patients, families, clinicians, and technology and communications professionals to promote patient- and family-centered care, including team care and shared decision-making. CCDmIC builds intimately and directly on the prior work of the two Collaboratives from whose merger it was established — the Best Practices Innovation Collaborative (BPIC) and the Evidence Communication Innovation Collaborative (ECIC). Its vision is for care that “is designed, with patient involvement, to ensure timely, convenient, well-coordinated engagement of a person’s health and health care needs, preferences, and values; it includes explicit and partnered determination of patient goals and care options; and it requires ongoing assessment of the care match with patient goals.” (IOM, Transforming Health Care Scheduling and Access: Getting to Now, 2015).
- Harnessing Evidence and Experience to Change Culture: A Guiding Framework for Patient and Family Engaged Care
- Patients and Health Care Teams Forging Effective Partnerships
- Shared Decision-Making Strategies for Best Care: Patient Decision Aids
- Social Networking Sites and the Continuously Learning Health System: A Survey
- Harmonizing Reporting on Potential Conflicts of Interest: A Common Disclosure Process for Health Care and Life Sciences
- Core Principles & Values of Effective Team-Based Health Care
- Communicating with Patients on Health Care Evidence
An ad hoc convening activity, under the auspices of the NAM Leadership Consortium for a Value & Science-Driven Health System, the Care Culture and Decision-Making Innovation Collaborative (CCDmIC) catalyzes joint activities among leaders of organizations of health professionals, patient- and family-focused organizations, decision science practitioners, and communications professionals. This newly created Innovation Collaborative builds directly on previous work of the Best Practices Innovation Collaborative (BPIC) and the Evidence Communication Innovation Collaborative (ECIC) and extends the reach of both.
This activity blends the expertise of professional organizations representing clinicians on the front lines of health care delivery, patient- and family-focused organizations, decision science practitioners, and government agencies actively involved in patient care, programs, and policies centrally concerned with the identification and application of best clinical services. These professional and citizen leaders will work collaboratively with individuals with relevant expertise from organizations with active, public, and patient-oriented health communication efforts. The aim is for an inclusive Collaborative — without walls — and participation in individual projects is structured according to interest, need, and practicality.
American Academy of Nursing
American Academy of Pediatrics
American College of Clinical Pharmacy
American College of Nurse-Midwives
American Hospital Association
American Institutes for Research
American Medical Association
Anne Arundel Medical Center
Association of Academic Health Centers
Association of American Medical Colleges
Blue Shield of California Foundation
Boston Children’s Hospital
C.S. Mott Children’s Hospital
Children’s Hospital of Philadelphia
Dana-Farber Cancer Institute
Dell Children’s Medical Center
Epic Systems Corp.
Georgetown University (C-TAC)
George Washington University
Georgia Regents Medical Center
Gordon and Betty Moore Foundation
Institute for Healthcare Improvement
Institute for Patient- and Family-Centered Care
Johns Hopkins Health System
Josiah Macy Jr. Foundation
National Association of Pediatric Nurse Practitioners
National Business Group on Health
National Committee for Quality Assurance
National Quality Forum
Nemours Health System
NYU Langone Medical Center
Patient-Centered Outcomes Research Institute
Qorvis MSL Group
Robert Wood Johnson Foundation
Schwartz Center for Compassionate Healthcare
University of North Carolina
University of Pennsylvania
University of Washington
Vidant Health System
U.S. Department of Health & Human Services
- Agency for Healthcare Research and Quality
- Centers for Disease Control and Prevention
- Centers for Medicare & Medicaid Services
- Food and Drug Administration
- Health Resources and Services Administration
- National Cancer Institute
- National Institutes of Health
- Veterans Health Administration
U.S. Department of Veterans Affairs
Recently Completed Projects
Projects completed under BPIC and ECIC, and CCDmIC include:
- Patient and Family Health Care Leadership: A Resource Compendium. Development of this Resource Compendium was made possible through the generous support of the Gordon and Betty Moore Foundation and was conducted through the work of participants in the Patient & Family Leadership Network under the auspices of the CCDmIC.
- In “Patients and Health Care Teams Forging Effective Partnerships,” the authors provide insight into how to include patients as members of the health care team in order to effectively deliver team-based care, insights made possible by semi-structured interviews with patients receiving such care. The discussion paper builds upon previous work regarding the core principles of team-based care in order to help achieve the three-part aim of providing quality care and better health at lower cost.
- Shared Decision-Making Strategies for Better Care: Patient Decision Aids. There is growing evidence that shared decision-making yields better outcomes and improves patients’ care experience. This discussion paper presents perspectives and progress in our understanding of what patients want in communication and decision support, and suggests catalysts to ensure that shared decision-making becomes a more routine aspect of care.
- Social Networking Sites and the Continuously Learning Health System: A Survey. A previous survey conducted under ECIC auspices indicates that nine in 10 American adults believe that their health-related data should be used to improve the care of other patients. This discussion paper explores how people value and understand health-related data sharing in a variety of contexts.
- Core Principles & Values of Effective Team-Based Health Care, a discussion paper in which authors identified key characteristics of effective teams from the literature and used interviews with 11 teams located in various urban and rural settings to clarify how these factors shape effective team-based care. The review is intended to help guide clinicians, patients, administrators, and other stakeholders in the delivery of high-value, team-based care focused on the goals and priorities of patients and their families.
Projects in Process
- Patient- and family-centered care revisited (planning phase). In the years since the Institute of Medicine codified the definition of patient-centered care, myriad definitions have come into use. To streamline approaches and to target incentives more effectively, a convening activity could be held to forge a common definition of patient- and family-centered care.
For more information, contact Emma Fine, Senior Program Assistant at EFine@nas.edu.