Care Culture and Decision-Making
Nurturing a culture of shared, science-driven, and informed decision-making that places patients and families firmly at its core
One of the four Innovation Collaboratives of the Leadership Consortium for a Value & Science-Driven Health System, the Care Culture and Decision-making Innovation Collaborative (CCDmIC) is an ad hoc convening of health care stakeholders working to change the culture of health care to deliver on the vision of a system in which all stakeholders actively and effectively work together to make shared decisions informed both by the most up to date evidence and the needs and preferences of patients, families, and the community at large.
Also operating under the auspices of the CCDmIC is the National Academy of Medicine (NAM) Patient
& Family Leadership Network, which supports ongoing communication, collaboration, and synergy among patient and family thought leaders to advance their equal and full engagement across the health care continuum: as equal and effective partners in care decisions, at the community and organizational level through continuous improvement initiatives, and at the policy level. The PFLN is a vibrant virtual Network that engages the nation’s patients and families in serving as effective leaders and advisors to the NAM and others to achieve better culture, better care, better value, and better health for all in a healthcare system that continuously learns and improves.
CCDmIC catalyzes joint activities to drive health care culture in three main areas:
Culture: Collaborative activities to ensure that the next generation of clinicians provides care that reflects patients’ preferences and values, care teams work collaboratively and in concert with patients, and health care leadership fosters the creation of a culture of care that is seamless, team-driven, and that continuously learns.
Evidence: The ability to make informed decisions requires targeted incentives and timely delivery of scientifically validated evidence at the point of decision in a format that best meets the needs of patients and family caregivers. To that end, learning health systems engage patients, families, and communities in the capture and use of information on their health and health care experiences to generate evidence and accelerate knowledge about the most effective and efficient care practices.
Engagement: The growth in awareness and opportunity for patients and families to be more engaged in their own care, as well as in the design and delivery of care at the organizational and policy levels, means it is critical to engage all health care stakeholders and accelerates the need to deepen the involvement of patients and family leadership in improving knowledge generation and value in health care, developing a culture of effective stakeholder collaboration, and the consistent, meaningful, and increasing engagement of patients, families, and communities in the design and delivery of health care in addition to personal engagement in their own health care decision-making.
This activity blends the expertise of professional organizations representing clinicians on the front lines of health care delivery, patient- and family-focused organizations, decision science practitioners, and government agencies actively involved in patient care or programs and policies centrally concerned with the identification and application of best clinical services. These professional and citizen leaders work collaboratively with individuals with relevant expertise from organizations with active, public, and patient-oriented health efforts.
The aim is for an inclusive Collaborative – without walls – and participation in individual projects is structured according to interest, need, and practicality. As such, CCDmIC seeks to include a wide variety of stakeholder voices to further cultural change and patient and family engagement, including but not limited to:
- Aging organizations
- Business and industry groups
- Child and maternal health organizations
- Clinician and other professional organizations
- Community organizations
- Decision science experts
- Government agencies
- Health and health care equity and disparities experts
- Health IT organizations
- Hospital and health system leaders
- Patient and family organizations
- Patient and family advisory council and thought leaders
- Pediatric organizations
- Payers and insurance organizations
- Public health organizations
- Purchaser and employer organizations
- Women’s health organizations
- Harnessing Evidence and Experience to Change Culture: A Guiding Framework for Patient and Family Engaged Care
- Patients and Health Care Teams Forging Effective Partnerships
- Shared Decision-Making Strategies for Best Care: Patient Decision Aids
- Social Networking Sites and the Continuously Learning Health System: A Survey
- Harmonizing Reporting on Potential Conflicts of Interest: A Common Disclosure Process for Health Care and Life Sciences
- Core Principles & Values of Effective Team-Based Health Care
- Communicating with Patients on Health Care Evidence
National Academies’ projects related to the work of CCDmIC include:
- Harnessing Evidence and Experience to Change Culture: A Guiding Framework for Patient and Family Engaged Care. An NAM Perspective written under the auspices of CCDmIC that identifies the evidence-based elements to guide culture change in hospitals and health systems to drive patient and family engaged care for transformative health change.
- Vital Directions for Health and Health Care. A recent Special Publication from the NAM outlining 19 key priorities for U.S. health policy, including better health and well-being across communities.
- Effective Care for High-Need Patients: Opportunities for Improving Outcomes, Value, and Health. Sponsored by the Peterson Center on Healthcare, this NAM publication explores the successful spread and scale of models targeted to complex patients.
- Communities in Action: Pathways to Health Equity. A National Academies of Sciences, Engineering, and Medicine report on the role of social determinants of health in disparities in health.
- Optimizing Strategies for Clinical Decision Support: Summary of a Meeting Series. The result of a collaboration between the NAM and the Office of the National Coordinator for Health Information Technology, this NAM Special Publication summarizes and builds upon a meeting series in which a multi-stakeholder group of experts discussed the potential of clinical decision support (CDS) to transform care and includes highlights from discussions to address the barriers to realizing the full benefits of CDS-facilitated value improvement.
- Patient and Family Health Care Leadership: A Resource Compendium. Development of this Resource Compendium was made possible through the generous support of the Gordon and Betty Moore Foundation and was conducted through the work of participants in the Patient & Family Leadership Network under the auspices of the CCDmIC.
- Patients and Health Care Teams Forging Effective Partnerships. This paper provides insight into how to include patients as members of the health care team in order to effectively deliver team-based care, gleaned from semi-structured interviews with patients receiving such care. The discussion paper building upon previous work regarding the core principles of team-based care in order to help achieve the three-part aim of providing quality care and better health at lower cost.
- Shared Decision-Making Strategies for Better Care: Patient Decision Aids. There is growing evidence that shared decision-making yields better outcomes and improves patients’ care experience. This discussion paper presents perspectives and progress in our understanding of what patients want in communication and decision support, and suggests catalysts to ensure that shared decision-making becomes a more routine aspect of care.
- Social Networking Sites and the Continuously Learning Health System: A Survey. An NAM survey indicates that nine in 10 American adults believe that their health-related data should be used to improve the care of other patients. This discussion paper explores how people value and understand health-related data sharing in a variety of contexts.
- Core Principles & Values of Effective Team-Based Health Care. A discussion paper in which authors identify key characteristics of effective teams from the literature and uses interviews with 11 teams located in various urban and rural settings to clarify how these factors shape effective team-based care. The review is intended to help guide clinicians, patients, administrators, and other stakeholders in the delivery of high-value, team-based care focused on the goals and priorities of patients and their families.
In-person attendance at meetings is by invitation only due to room capacity limitations. All meetings are available by webcast, and information on joining the webcast is available on the meeting event page as the meeting approaches.
For more information, contact Anna Cupito, Research Associate, at firstname.lastname@example.org.