National Academy of Medicine

Care Culture and Decision-Making

Science-driven health care and effective communication

Innovation Collaborative Brochure

William Novelli (Co-Chair)

William D. Novelli (Co-Chair)

Mary Naylor (Co-Chair)

Mary D. Naylor (Co-Chair)

Care Culture and Decision-Making (CCDmIC) is the newest of the Leadership Consortium’s convening activities. CCDmIC brings together patients, families, clinicians, and technology and communications professionals to promote patient- and family-centered care, including team care and shared decision-making. CCDmIC builds intimately and directly on the prior work of the two Collaboratives from whose merger it was established — the Best Practices Innovation Collaborative (BPIC) and the Evidence Communication Innovation Collaborative (ECIC). Its vision is for care that “is designed, with patient involvement, to ensure timely, convenient, well-coordinated engagement of a person’s health and health care needs, preferences, and values; it includes explicit and partnered determination of patient goals and care options; and it requires ongoing assessment of the care match with patient goals.” (IOM, Transforming Health Care Scheduling and Access: Getting to Now, 2015).

  • Participants

    This activity blends the expertise of professional organizations representing clinicians on the front lines of health care delivery, patient- and family-focused organizations, decision science practitioners, and government agencies actively involved in patient care, programs, and policies centrally concerned with the identification and application of best clinical services. These professional and citizen leaders will work collaboratively with individuals with relevant expertise from organizations with active, public, and patient-oriented health communication efforts. The aim is for an inclusive Collaborative — without walls — and participation in individual projects is structured according to interest, need, and practicality.

    Representative Participants

    Organizations

    AARP
    American Academy of Nursing
    American Academy of Pediatrics
    American College of Clinical Pharmacy
    American College of Nurse-Midwives
    American Hospital Association
    American Institutes for Research
    American Medical Association
    Anne Arundel Medical Center
    Association of Academic Health Centers
    Association of American Medical Colleges
    AstraZeneca, LP
    Blue Shield of California Foundation
    Boston Children’s Hospital
    C.S. Mott Children’s Hospital
    Children’s Hospital of Philadelphia
    Consumer Reports
    Dana-Farber Cancer Institute
    Dell Children’s Medical Center
    Duke University
    Epic Systems Corp.
    Georgetown University (C-TAC)
    George Washington University
    Georgia Regents Medical Center
    Gordon and Betty Moore Foundation
    Institute for Healthcare Improvement
    Institute for Patient- and Family-Centered Care
    Johns Hopkins Health System
    Josiah Macy Jr. Foundation
    Kaiser Permanente
    Mayo Clinic
    National Association of Pediatric Nurse Practitioners
    National Business Group on Health
    National Committee for Quality Assurance
    National Quality Forum
    Nemours Health System
    Northwestern University
    NYU Langone Medical Center
    Patient-Centered Outcomes Research Institute
    PatientsLikeMe
    PFCC Partners
    Planetree
    Qorvis MSL Group
    Research!America
    Robert Wood Johnson Foundation
    Sanofi
    Schwartz Center for Compassionate Healthcare
    University Hospitals
    University of North Carolina
    University of Pennsylvania
    University of Washington
    Vidant Health System

    Federal Agencies

    U.S. Department of Health & Human Services

    • Agency for Healthcare Research and Quality
    • Centers for Disease Control and Prevention
    • Centers for Medicare & Medicaid Services
    • Food and Drug Administration
    • Health Resources and Services Administration
    • National Cancer Institute
    • National Institutes of Health
    • Veterans Health Administration

    U.S. Department of Veterans Affairs

  • Activities

    Recently Completed Projects

    Projects completed under BPIC and ECIC, and CCDmIC include:

    • Patient and Family Health Care Leadership: A Resource Compendium. Development of this Resource Compendium was made possible through the generous support of the Gordon and Betty Moore Foundation and was conducted through the work of participants in the Patient & Family Leadership Network under the auspices of the CCDmIC.
    • In “Patients and Health Care Teams Forging Effective Partnerships,” the authors provide insight into how to include patients as members of the health care team in order to effectively deliver team-based care, insights made possible by semi-structured interviews with patients receiving such care. The discussion paper builds upon previous work regarding the core principles of team-based care in order to help achieve the three-part aim of providing quality care and better health at lower cost.
    • Shared Decision-Making Strategies for Better Care: Patient Decision Aids. There is growing evidence that shared decision-making yields better outcomes and improves patients’ care experience. This discussion paper presents perspectives and progress in our understanding of what patients want in communication and decision support, and suggests catalysts to ensure that shared decision-making becomes a more routine aspect of care.
    • Social Networking Sites and the Continuously Learning Health System: A Survey. A previous survey conducted under ECIC auspices indicates that nine in 10 American adults believe that their health-related data should be used to improve the care of other patients. This discussion paper explores how people value and understand health-related data sharing in a variety of contexts.
    • Core Principles & Values of Effective Team-Based Health Care, a discussion paper in which authors identified key characteristics of effective teams from the literature and used interviews with 11 teams located in various urban and rural settings to clarify how these factors shape effective team-based care. The review is intended to help guide clinicians, patients, administrators, and other stakeholders in the delivery of high-value, team-based care focused on the goals and priorities of patients and their families.

    Projects in Process

    • Patient- and family-centered care revisited (planning phase). In the years since the Institute of Medicine codified the definition of patient-centered care, myriad definitions have come into use. To streamline approaches and to target incentives more effectively, a convening activity could be held to forge a common definition of patient- and family-centered care.
  • Upcoming Meetings

    • December 7, 2017

For more information, contact Emma Fine,  Senior Program Assistant at EFine@nas.edu