National Academy of Medicine

Data Altruism: Honoring Patients' Expectations for Continuous Learning

By George C. Halvorson, William D. Novelli
January 23, 2014 | Commentary

Ninety-four percent of U.S. adult social media users with health conditions agree with use of their health data, shared anonymously, to help clinicians improve care, according to a discussion paper available today from the Institute of Medicine (IOM). This strongly prevailing perspective was reinforced by answers to different survey questions with similar intents, which found that 92 percent of respondents supported sharing their health data to help research and 94 percent to help other patients…

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Disclaimer: The views expressed in this paper are those of the authors and not necessarily of the authors’ organizations, the National Academy of Medicine (NAM), or the National Academies of Sciences, Engineering, and Medicine (the National Academies). The paper is intended to help inform and stimulate discussion. It is not a report of the NAM or the National Academies. Copyright by the National Academy of Sciences. All rights reserved.